Tagged With "Krabbe Disease"

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Infographic on Krabbe Disease

Chapter Leader: Sherry Mi · 4/13/247:44 PM

Ms. Stacy Pike-Langenfeld, cofounder of the Krabbe disease advocacy KrabbeConnect, gave birth to her daughter Makayla in 2001. Makayla “was perfect until she wasn’t”—Krabbe disease visited her at 3.5 months of age and took her away at the age of 2. “There are no words that capture the vileness of infantile Krabbe disease. Absolutely none,” said Ms. Pike-Langenfeld. 20 years after the tragedy, hope has finally emerged for Ms. Pike-Langenfeld: her home state, Minnesota, has started universal...

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Infographic on Krabbe Disease

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